Appeal to ROTARY - 2004
There have been numerous appeals for a hugely meaningful global
effort to fight HIV/AIDS, one of the most dramatically moving
is that of Stephen Lewis, the UN's Special Envoy for HIV/AIDS
in Africa, given to the luncheon meeting of the Rotary Club of
Toronto, Canada, on January 9, 2004.
The Australian AIDS Fund Incorporated and AIDS Information services
is reproducing that speech on this website as a measure of our support
for a special initiative - that Rotary International might take
up HIV/AIDS as its next global challenge with the same magnificent
spirit that it took on and helped shatter global polio.
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But the challenge is there for everyone and even the power
of just one alone has been shown to move mountains and more.
We will also seek Rotary International's President - Nigeria's
Jonathan B. Majiyagbe (pictured left)
for his response to Stephen Lewis's invitation.
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We've acompanied this speech with a specially designed
variation of the international 'red ribbon' insignia for HIV/AIDS
simply using two human hands. It's the work of 25 year old Israeli
artist, Shai Swissa, who offered it to us. |
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February, 2004 - The Australian AIDS Fund Inc is pleased to
promote and support Rotary International's special initiatives
in the area of HIV/AIDS and to encourage our website visitors
to visit that specific website and to help where you can
Rotarian Fellowship
for Fighting AIDS
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Mr Lewis's speech follows:
I want to begin with three anecdotes from which lessons can be drawn.
First: Not long ago, I had occasion to speak with an infectious
disease specialist in New York City. She was telling me that she had
followed the entire course of the HIV/AIDS pandemic, for its more than
twenty-two years, and for the first fifteen years, what she remembers
most vividly is sitting in shadowed hospital rooms, holding the hands
of mothers as they watched their sons die.
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And then she stopped talking, contemplatively silent for a moment
or two, and added: you know, all my patients in treatment are
flourishing today. They're gaining weight, feeling well, working,
enjoying their families. In fact, I can't remember when I last
attended the funeral of one of my patients.
I thought to myself: those words capture, vividly, the greatest
double standard which besets the modern world. In the west, HIV/AIDS,
with drugs, has become a chronic illness. In the high HIV prevalence
countries in Africa, where I do my work for the United Nations,
funerals are the leitmotif of life. Attending funerals is a painful
and ubiquitous national activity. Three million people died of
AIDS last year, the vast majority in Africa. There are an estimated
fifteen thousand new infections every day, the vast majority in
Africa. Dealing with death, anticipating death, preparing for
death, are eerily measurable components of a country's Gross National
Product.
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Photo by Stephanie Nolen |
Second: I was in Botswana last month, a small country - 1.6 million
people - but the country with the highest HIV prevalence rate in the world.
Between 35 and 40% of everyone between the ages of 15 and 49 is infected
with the virus. I was sitting and chatting with several groups of people
living with AIDS, represented, as always by women, because women comprise
such a hugely disproportionate share of infections, and I asked them,
as I always do, what it is that they most need? Food, they said, blankets,
money for school fees for their children, soap, and employment. Any kind
of income-generating project. Wait a minute, I said, what about treatment?
They all looked positively bemused. Treatment, they replied, that's not
a problem. It's free; when we need
it we just get it.
I was stunned. No one in Africa had ever said that to me before.
But you see, Botswana has money. Reserves of wealth from diamonds, and
it has a remarkable public-private partnership with Merck and the Gates
Foundation, each of which has contributed $50 million, and it has state
of the art laboratory facilities orchestrated by Harvard, and it has
a health infrastructure of reasonable integrity, and most important,
it has unprecedented commitment from the government. At the Princess
Marina Hospital in the capital city, Gabarone, 5,700 people are in treatment
with antiretroviral drugs; the largest public sector programme of its
kind on the continent. And it's free for all, because that's government
policy. It's an astonishingly impressive initiative, demonstrating what
can be done if the circumstances are propitious, although it must be
said that even with the infrastructure and the resources, there have
been lots of difficulties along the way, and for a variety of reasons,
treatment has progressed far more slowly than the Government of Botswana
would have wished.
The problem, however, is, that with the possible exception of parts
ofSouth Africa, no other country in sub-Saharan Africa has even the
approximation of the setup in Botswana. And again, with the possible
exception of South Africa, no other country in Africa has the resources,
let alone the infrastructure or capacity of Botswana. Botswana has shown
what can be done; but at the moment, no one else comes close. So treatment
is a mirage for millions.
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Stephen Lewis, the UN's Special Envoy for HIV/AIDS
in Africa.
Photo by Nicole Toutounji, UNICEF
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Third: In Alexandra Township in South Africa, an impoverished
township in Johannesburg, I met last month with a wonderful group
of women known as the "Go-Go Grannies". There were eighteen
grandmothers, all of whom had lost one or more of their children
to AIDS, and all of whom were now bringing up one or more grandchildren.
That's the stark perversity of AIDS which turns the rhythm of
life on its head: grandparents bury their children, and sometimes
their grandchildren, before they themselves are buried.
We must have talked, under the trees, outside a friendly little
community health clinic for nearly two hours. The grandmothers
spun their sad, sad, desolate stories, one by one, interspersed
with the moments of fun and hilarity and mock teasing that this
sort of group networking can provide to ease the pain. But sometimes
the pain can never be assuaged. Not even for a moment.
The last grandmother to speak, with great reluctance and fighting
for control, was a 73-year-old woman, who explained, in strangled
whispers, that she had lost all five of her children to AIDS between
the years
2001 and 2003. |
She was left to care for four orphan grandchildren, and emotionally, let
alone physically, she can't cope, because she's falling apart. And I learned,
as I left the compound, that all four of the children - all four - are
HIV Positive. So within a mere blink of time, she will bury her entire
family, two generations, all of whose lives were prematurely savaged by
a plague that knows no bounds.
At some point in the future, historians are going to look back at this
period and ask, quite simply, how in God's name the world allowed this
to happen? Over twenty million people have already perished, the vast
majority in the developing world. It's of the same genre as General
Romeo Dallaire's question: how did the world stand by and watch the
genocide in Rwanda without lifting a finger? There seem to be these
historical moments, these historical periods when moral resolve either
freezes or evaporates. It's not just unconscionable; it's inexplicable.
The excruciating truth is that the pandemic need not have come to
this. If the African leadership, early on, had not been consumed by
denial and fear, if the industrial nations, early on, had made resources
available,
if the world had been energized around the pandemic as it has been energized
around Afghanistan, Iraq and terrorism - the unequal distribution of
war and compassion drives me crazy - then millions of people would still
be alive today, and millions of others would have a fighting chance
of prolonging life, and you wouldn't have between eleven and fourteen
million orphans, no different in any way from your children
and mine, from your grandchildren and mine, wandering the landscape
of Africa, bewildered, forlorn, anguished, abandoned, exploited, hungry,
despairing . cared for by grandmothers or older siblings or communities
already reeling and further impoverished by the impact of AIDS. It's
a real shock to the system to encounter these orphan kids. Early last
month, improbably enough, I accompanied Oprah Winfrey on a tour of orphan
settings in and around Lusaka, Zambia. Oprah wants to extend her unrivalled,
powerful voice to the cause of African children orphaned by AIDS, and
I could see, as we travelled from one orphan environment to another,
that even Oprah Winfrey, with her cosmic sophistication, was shaken
to the core by what we saw. These are children who are losing, or have
lost, their childhood.
In many of the countries of east, central and southern Africa, the
clock is ticking backwards. The development gains of the last decades
are in reverse; the major millennium development goals which the United
Nations
set for 2015 will never be reached. Life expectancy in many countries
has dropped from an average age of 60 to 62, down to age 37 to 40. Can
you imagine it: losing over 20 years of longevity in roughly a decade?
Infant mortality rates are up; children are leaving school to care for
sick and dying parents; whole sectors of society - agriculture, health,
education, the private sector are diminished and compromised by the
loss of the most productive age groups. It is an astonishing tribute
to the people of Africa - their resilience and their determination -
that countries continue to function, heroically, even as they are assaulted
by the pandemic.
When you're on the ground in Africa, watching the pandemic unfold,
it's hard not to be gloomy, to be despairing. People are so lovely;
death is so pervasive. The needless loss of so many lives, especially
the young women in their late teens, and twenties and thirties, victims
of a brutal gender inequality. It's all so heartbreaking. And yet it
would be wrong of me not to acknowledge the glimmers of hope as we enter
2004.
Finally, resources are inching upwards from many sources; finally,
we're going to have a concerted programme of treatment, led by a rejuvenated
World Health Organization, determined to put three million people into
treatment by 2005 (3 by 5 is the catch-phrase). It's indescribably exciting,
finally we've moved the price of anti-retroviral drugs, generic drugs,
down to a level of roughly $150 per person per year, so that African
governments, with the help of external resources, can begin prolonging
human life; finally, the superb examples of successful prevention initiatives,
in Uganda and Senegal, have captured the imagination of the continent;
finally, the issue of orphans is being addressed, even if not yet solved;
finally, finally, there is a growing,
irreversible recognition that the pandemic has a woman's face, and that
if women and girls are not empowered, above all in the control of their
own sexuality, the pandemic will never be broken; finally, there is
a new energy within the international community, almost palpable, which
suggests that this year may see a breakthrough.
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But there's something else I want to say that I've never addressed
in a speech before, and for which omission, I am deeply self-conscious.
I feel frankly ashamed that I haven't yet embraced the full logic
of certain arguments. I think inevitably one gets so caught up
in the emergency of the here and now, that perspective is dimmed.
The terrible reality is that with the best prevention programmes
in the world - and many of them are truly inspired at community
level - we're still facing several million new infections all
over the planet, not just Africa, every year. And an equal reality,
which must be faced, is that it's going to take generations to
change male sexual behaviour, if ever. And as everyone surely
by now understands, treatment itself will prolong life, but it's
not a cure. So so much of what we're doing in response to the
pandemic, while monumentally vital, will not,
ultimately, subdue it.
The question then that must be asked is why such limited focus,
in speeches and advocacy, is given to the matter of a vaccine?
I'm going to try to deal with that in speeches over the next number
of weeks and months, but for the moment allow me merely to say
the chillingly obvious: only a vaccine will write an end to the
pandemic. Until that day comes, we will forever count the bodies.
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Stephen Lewis, the UN's Special Envoy for HIV/AIDS
in Africa.
Photo by Brenda Barton, WFP |
Just yesterday, in New York, I visited the offices of IAVI, the International
AIDS Vaccine Initiative, headed by its creator, a remarkably intelligent
and charismatic CEO, Seth Berkley by name. IAVI is actually an NGO -
non-governmental organization - which in only five years has managed
to put together the largest number of
public/private vaccine trials on the ground in developing countries.
Only the pharmaceutical company Merck, rivals IAVI in the energy with
which a vaccine is currently being pursued. Seth Berkley points out
that in the 23 years of the pandemic, only one potential vaccine has
gone to
phase three, human trials (unsuccessful by the way), a situation which
he describes as crazy. And when you begin to probe the reasons, it's
not simply because of the huge scientific complexity - although that
is
undoubtedly a major factor - but like so much else with AIDS, it's also
a matter of resources and priorities and political will, although it
must be said in this forum that Canada to its credit is one of the largest
contributors to the Vaccine Initiative (which is not to say that the
contribution is sufficient).
As things now stand, even with the best possible results of the
various trials underway, we're still several years away from a vaccine.
And every year the infections mount and the lives are lost in the millions.
It seems to me a matter of the most elemental logic that the political
and scientific establishments, in developed and developing countries
alike, should be maniacally obsessed with the quest for a vaccine.
Despite the magnificent efforts of IAVI, the issue still lacks the profile
it must have. Something, somewhere, is deeply, profoundly, out of whack.
And that brings me to the conclusion of these remarks, with special
reference to Rotary. The current issue of the New Yorker magazine carries
an article titled "The End of Polio; a disease on the edge of extinction".
The article, in fascinating exposition, describes how, over fifteen
years, millions of lives have been rescued from death and paralysis
by the unremitting campaign of immunization, led by WHO and UNICEF,
to wipe polio from the face of the earth. It will be achieved by 2005.
But the article also faithfully points out that Rotary has contributed
well over half a billion dollars to the campaign, earning the kudos
and recognition which accompanies a magnificent contribution to human
well-being.
Rotary International needs another cause. Forgive my presumption
if I say that the cause should be HIV/AIDS, and Rotary Canada could
well be the advocate body that makes the case at the international level.
And if you want a focus, in addition to the inevitable work on the ground,
perhaps that focus can be on a vaccine. I know that there are already
Canadian members of Rotary who are pursuing the international possibilities.
But I can add, in an intensely personal way, that you are also making
an extraordinary contribution to the Foundation which bears my name.
When my daughter and I decided to establish the Foundation in March/April
of last year, we had no idea that Rotary, and the unions and the churches,
and what feels like a legion of individuals would be so profoundly generous.
The Foundation has now received in that relatively brief space of time,
over a million dollars, with minimal solicitation, and we're getting
the money out as responsibly and quickly as possible to a number of
grass-roots projects in several countries, addressing issues of palliative
care, and orphans, and yes, grandmothers, and associations of people
living with AIDS . fundamentally all of the groups who are so vulnerable
and so incredibly poor, and yet can perform miracles of human intervention
with a few thousand dollars.
It makes me proud to be a Canadian. There's a real yearning in this
country often expressed through Rotary to extend a hand of help to the
uprooted and disinherited of the world. People are so intensely caring,
so intensely generous, wanting to make a personal difference as a kind
of antidote to the cynicism about governments. I hope that that cynicism
changes, and quickly, but until it does, all of the wonderful Canadian
NGOs and Foundations, who make such a difference in the lives people
lead in developing countries, are truly worthy of support.
In terms of the Stephen Lewis Foundation, I can't thank you enough.
I'm 66 years old; I've had the privilege of working in politics, diplomacy
and multilateralism: I've never encountered a cause more consuming than
the battle against HIV/AIDS.
Thank you.
For information about the Stephen Lewis Foundation, please visit:
www.stephenlewisfoundation.org
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